Six Lung Collapses, Then A Rare Disease Diagnosis

Thirty million people live with a rare disease in the United States. And for many of them, it often takes years to get a diagnosis. For one Chicago woman, those years were marked by uncertainty and doctors’ dismissal of her growing pain as she experienced lung collapse after lung collapse. She was eventually diagnosed with a rare form of endometriosis. Reset sits down with her to hear her story and to talk about how women navigate physical pain and the medical system. For a full archive of Reset interviews, head over to wbez.org/reset.